stomach bug, no more

[jasemateau]

this is an old topic, i'm sure there is a thread but i can seem to find it.

anyway from memory i asked a few questions regarding forum members experiences with stomach bugs after traveling.

my stomach problems began after returning home from kuwait, where i spent 2 months, this problem i had was preatty embarresing, farting like hell, gargeling in the stomach,and running poo's

i thought it was simply because i had a rapid change in diet, i went from eating salads,fresh cooked meats, fruit,berries,pasta, heaps and heaps of fresh vegies.

to dahl, and dahl, dahl was about the only thing i could really enjoy, for what else was on offer, silly really i was working in a 5 star hotel and all the had on offer for the europeans was dahl.(in staff canteen)

so after 2 years of visiting my local GP, getting no real answers, with any real binding to help, the only thing that the GP came up with was perhaps i was a celiac, this was unacceptable at first because i'm a pastry chef.

to move on

i woke up 3 weeks ago at 4 am in agony never experienced before. my stomach felt like a huge crap and i simply couldn't move far at all with holding back tears.

so off to my GP i go, i told her what i was experienceing, what my most recent stool looked like, and she sent me to hospital straight away.

after 9642 blood tests, 2 cat scans,3 x-rays, and finally the only thing that provided the answer was a colonoscopy.

after a biopsy of my colon, i was diagnosed with crohn's disease.

after plenty of conversations with every doctor i could get answers from, there is no know reason for crohns disease,

they belive in my case it could have been because i was traveling for so many years in and out of all sorts of countries and being exposed to so many potential intestinal bacteria.

it's a strong possiblity that my immune system has been able to fight off the foreign bacteria succesfully,

however once all the evil bacteria was gone they belive my immune system continued to try and kill of bacteria that was'nt there,

this has made the my intestines,colon thick and thin, and inflamed,.

the result of undiagnosed crohns disease have left me 10kgs underweight, bordering malnutrition.

so heads up people,

finally after all this time i'm on a steriod for only 6 weeks to deal with the inflamation now until anthoer cytotoxic drug kicks in.

i cant belive how great i feel.

now the having a condition is the least of my worries, i know what i can eat, and strangly enough i'm eating like a pig, can stop eating, moral is up and everything is felling so much better.

please excuse the spelling guys, but the main reason for the post is to get somthing off my chest, also bring some awareness to crohns diesase.

could alot of other thing lot worse than crohns.

[apothecary]

That's right! Good to hear you aren't gonna die on us and good to hear about your appetite, one of the things I enjoy is seeing people blurring the line of what the can eat and what they should eat

So...do you feel like some dahl?

[Rev]

A genetically unrelated but close member of my family has this condition too

it only seems to have heppanned since they started going to thailand often

[in_spirit]

I too have been diagnosed ceoliac, My sister is ceoliac, getting past the rotten tests you need to have done before the biopsy is hard but the diet is harder... Problem is I am still bad in the stomach just as you were, I have an Aunt with Crohns, but they also told me 3mths to 2yrs to heal the damage done by my diet......

[jasemateau]

hi my ol green thumbed friends

i am embarking on this treatment for my peril, which i think i mange very well, just want to optimize my quality of life.....

http://en.wikipedia.org/wiki/Helminthic_therapy

planing on going to madrid to get the treatment administered...

will update you some more, but if anyone of you guys with a auto immune affliction, reseacrch it for your self, its farg'n amazing how much this makes sense....

will post some more information soon

[Torsten]

ahhh, another worm afficionado ;) [see other threads - keyword hookworm]

you don't have to go overseas. There is an australian specialist doing this up in central or north Q. I haven't been in touch with him directly, but I know the team that clean his worms for human use ;)

Worms usually only help wit IgE related autoimmune problems. if your IgE isn't elevated then the worms will likely be a waste of money. My problems are mostly IgG based, so I am not expecting too much from the worms, but i want to give it a try anyway. I like the 'old friends' theory. For non-IgE type problems [eg IgG] you're better off getting a fecal transplant at the Centre for Digestive Diseases in sydney.

[inpsyght]

that australian based specialist is my ex's dad, pretty sure he's still based in townsville.

if you're interested, send me a pm and i'll ask if he's still researching along these lines

and can recommend someone who can apply as treatment, or any current trials to participate in.

[AndyAmine.]

Im getting tested for Crohn's disease next week if nothing shows up on the gallbladder scans on Friday.

Just read up on the 'fecal transplant' T, hmm, yeah, sounds wonderful. lol.

[Torsten]

I am currently on entocort [budesonide] - a prednisone type steroid that does not affect the adrenals and hence does not have the side effects of prednisone [like bone density problems etc]. It's not working great for major attacks, but working very well for the day to day niggles. It is commonly used for crohns so if your doc hasn't offered it maybe ask for it.

andy, the fecal implant isn't as far out as it sounds. It's been done on animals for a long time cos they don't have the yuck factor. After thinking about it for a few months I am over it. I would have done it already if I didn't need to get some dental work done soon that requires me to take antibiotics.

thanks inpsyght. PMed.

[Evil Genius]

Im on budesonide too sometimes. But atm im prednisone, which helps me a little bit better. A few years ago, i had a great prednisone-type corticoid which was called ultralan. I think it was Fluocortolon and it really improved my general condition a lot.